mySCDstory.org

Story Map

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Month 2
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Month 4
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Month 5
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Month 6
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Month 7
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Month 8
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Month 9
Month 10
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Month 11
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Month 12
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Month 18
2 Years
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3 Years
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6 Years
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11 Years
15 Years
21 Years
 
Medication
Nia and her family talk with her doctor in a clinic room.
Nia taking medicine at home.
Nia taking medicine at home.
Nia taking medicine at home.
Nia plays saxophone in jazz band.
Nia plays saxophone in jazz band.
Nia having pain crisis in bedroom at night.
Nia taking medicine at home.
Nia plays saxophone in jazz band.
Nia taking medicine at home.
Nia plays saxophone in jazz band.
Nia's family celebrates Nia's 14th birthday.
Nia having pain crisis in bedroom at night.
Nia's family celebrates Nia's 15th birthday.
Nia in hospital bed getting treatment for acute chest syndrome.
Nia taking medicine at home.
Nia's family celebrates Nia's 19th birthday.
Nia with new doctor in exam room.
Nia teaches music class in an elementary school.
Nia celebrates her 34th birthday with her husband.
Chronic Transfusion Therapy
Nia and her family talk with her doctor in a clinic room.
Nia gets some blood drawn for a test.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia in the hospital getting treated for acute chest syndrome.
Nia sitting in a chair at the infusion center.
Nia sitting in a chair at the infusion center.
Nia's family celebrates Nia's 14th birthday.
Nia getting an MRI.
Nia sitting in a chair at the infusion center.
Nia's family celebrates Nia's 15th birthday.
Nia's doctor talking to family about test results.
Nia taking medicine at home.
Nia plays saxaphone in jazz band.
Nia's doctor talking to family about test results.
Nia sitting in a chair at the infusion center.
Nia in the hospital getting treated for acute chest syndrome.
Nia's family celebrates Nia's 19th birthday.
Nia's doctor talking to family about test results.
Nia's doctor in his office talking on the phone.
Nia sitting in a chair at the infusion center.
Nia seeing a new doctor.
Nia teaches music class in an elementary school.
Nia is pregnant and celebrates her 34th birthday with her husband.
Bone Marrow Transplant
Nia and her family talk with her doctor in a clinic room.
Nia's mother signs consent documents.
Nia gets some blood drawn for a test.
Nia's brother gets some blood drawn for a test.
Nia's doctor in his office looking at his computer.
Nia's doctor talks to the family.
Nia's dad gets a medical checkup.
In a hospital hallway, Nia is about to go into surgery.
Nia laying down in an MRI machine.
In a confernce room, people from the medical team talk with Nia and her family.
Nia and her family enter the hospital.
Nia in a hospital bed with an IV.
Nia's dad in a chair with a machine to collect blood-making stem cells.
Nia in a hospital bed with an IV.
Nia in a hospital bed talking with her doctor.
Nia in a hospital bed with symptoms from GVHD.
Nia sitting up in hospital bed feeling better.
Nia and her family leave the hospital.
Nia's doctor looks at Nia's symptoms in an exam room.
Nia looks at her face in the bathroom mirror.
Nia's doctor looks at Nia's symptoms in an exam room.
Nia plays her saxophone alone in her room.
Nia's shows her doctor that her symptoms are getting better.
Nia's family celebrates Nia's 14th birthday.
A nurse gives Nia vaccines in an exam room.
Nia's family celebrates Nia's 15th birthday.
Nia plays saxophone at jazz band rehearsal in school.
Nia celebrates her 19th birthday with friends in a restaurant.
Nia's family celebrates Nia's 24th birthday.
Nia teaches music class in an elementary school.
Nia celebrates her 34th birthday with her husband.
Gene Therapy
Nia and her family talk with her doctor in a clinic room.
Nia's mother signs consent documents.
Nia gets some blood drawn for a test.
Nia gets a blood transfusion.
Nia gets a blood transfusion.
Nia gets a blood transfusion.
Nia in hospital connected to a machine.
Nia in pain and being treated for acute chest syndrome.
Nia's doctor in his office looking at his computer.
Nia gets a blood transfusion.
Nia gets a blood transfusion.
Nia in hospital connected to a machine.
Lab tech working with cells in laboratory.
Lab tech putting cells in freezer.
In a hospital hallway, Nia is about to go into surgery.
Nia laying down in an MRI machine.
In a confernce room, people from the medical team talk with Nia and her family.
Nia and her family enter the hospital.
Nia in a hospital bed with an IV.
Nia in a hospital bed with an IV.
Nia in a hospital bed talking with her doctor.
Nia sitting up in hospital bed with birthday decorations.
Nia and her family leave the hospital.
Nia's doctor looks at Nia in an exam room.
A nurse gives Nia vaccines in an exam room.
Nia's family celebrates Nia's 15th birthday.
Nia plays saxophone at jazz band rehearsal in school.
Nia celebrates her 19th birthday with friends in a restaurant.
Nia's family celebrates Nia's 24th birthday.
Nia teaches music class in an elementary school.
Nia celebrates her 34th birthday with her husband.

Icon legend:

Pain Crisis
Pain Crisis
Chemotherapy
Chemotherapy
Infusion
Infusion
Pregnancy
Pregnancy
Hospitalization
Hospitalization
Apheresis
Apheresis
Medication
Medication
Immunosuppressed
Immunosuppressed
Simple Transfusion
Simple Transfusion
Exchange Transfusion
Exchange Transfusion
Central Line
Central Line
MRI
MRI
Clinic Visit
Clinic Visit
Lab Tests
Lab Tests
Fertility Preservation
Fertility Preservation
Graft Versus Host Disease
Graft Versus Host Disease