Month 7
Nia is 13
Month 7
Nia is 13
Nia is going home today! She still has graft versus host disease and will take medicine for this at home.
If there are no big problems, you will leave the hospital.
The timing is different for everyone:
- Your doctors decide how long you need to stay in the hospital.
- They only let you leave if they think it will be safe.
- Most people stay in the hospital for 5 to 8 weeks.
You can still have some problems after you leave the hospital.
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You will be immunosuppressed (unable to fight germs) for about 6 months.
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If you have graft versus host disease, your doctors will give you medicine to help treat the problems.
You will be very immunosuppressed (unable to fight germs).
- Chemotherapy kills your old blood-making stem cells. This means you will not have enough white blood cells (immune system cells) for a few months.
- The donated stem cells will start making new white blood cells, but you can still get very sick from germs for a few weeks or months after chemotherapy.
- For the first few months, you are at the highest risk of getting very sick from germs. You can get very sick for about 6 to 12 months after chemotherapy.
- In the hospital, they take extra care to keep germs away from you. Your doctors will also give you medicine to fight germs once you go home.
- You may not be able to visit friends or meet with loved ones for a few weeks even after you have discharged from the hospital.
Graft versus host disease (GvHD) is when the donor cells attack your body.
- The donated blood-making stem cells make immune cells that ‘attack’ your body.
- These new white blood cells can get confused because your body is not the same as the donor’s body. This is why they can attack your body.
- The bone marrow transplant can still work, even if you have this problem.
- Your doctors will give you medicine to try to prevent it or stop it if it happens.
- People may need to take these medicines to prevent or treat GvHD for several months after transplant.
- The medicine does not work for some people. They can get very sick or die.
If graft versus host disease (GvHD) happens, you can have:
- Rash and skin ulceration
- Diarrhea (watery poop)
- Yellow skin and eyes
- Dry and scaly skin
- Darkening of skin
- Hardening of skin texture
- Skin scarring/restriction of joints
- Dryness and sores in the mouth and esophagus
- Dry eyes and redness in the eyes
- Dryness of the vagina and other surfaces
- Drying and scarring of lungs
- Liver injury or liver failure