Month 1
Nia is 13
Month 1
Nia is 13
Nia’s family decides she will stay on Hydroxyurea (her current medicine). They do not think bone marrow transplant or gene therapy is the right choice for Nia.
Hydroxyurea can stop many sickle cell disease problems.
If it works:
- You will not have a pain crisis as often, but you can still have pain.
- You will not get acute chest syndrome as often, but you can still get it.
- You will not need as many blood transfusions.
- You will not need to go to the hospital as often.
- It may slow down new organ damage from sickle cell disease, but it will not fix any organ damage you already have.
- You should not have as many short-term or long-term medical problems from sickle cell disease.
Hydroxyurea is not a cure.
There are risks and costs to consider.
Time
- It does not take a lot of time unless problems happen.
- You take it daily in pill or liquid form.
- You can still have sickle cell disease problems that make you go to the hospital. This happens less if you take your medication every day.
- You can have side effects from Hydroxyurea, and you may need to have extra visits to the doctor to adjust the amount you take.
Risks
- It does not stop all problems from sickle cell disease.
- You can still sometimes have a pain crisis.
- It does not fix any organ damage you already have, and you can still get new organ damage.
- Your doctor needs to figure out how much Hydroxyurea is safe for you. If you take too much, it can cause big health problems.
- Even with the correct amount, there are side effects.
Cost
- The financial cost is different for everyone, but Hydroxyurea is usually cheap.
- It can be covered by your health insurance.
- There might be a co-pay or deductible cost.
- You can ask your doctor and your insurance company about the cost.
Mental Health
- Mental health challenges are different for everyone.
- You will still have sickle cell disease problems sometimes.
- You will still have hard days and good days.
Everyone is different. Your doctor can talk about the pros and cons of staying with your current medication.